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Your Stories is a mini-podcast series featuring the unscripted conversations between patients, doctors, and the family and friends who conquer cancer with them.  Participants share their inspiring experiences as wives and husbands, daughters and sons, and sisters and brothers whose lives were interrupted by cancer.

Disclaimer

The purpose of this podcast is to educate and to inform. The podcast is provided on the understanding that it does not constitute medical or other professional advice or services. It is no substitute for professional care by a doctor or other qualified medical professional and is not intended for use in the diagnosis or treatment of individual conditions. Guests who speak in a podcast express their own opinions, experience and conclusions. Neither Conquer Cancer, the ASCO Foundations, nor any of its affiliates endorses, supports or opposes any particular treatment option or other matter discussed in a podcast. The mention of any product, service, organization, activity or therapy on a podcast should not be construed as an endorsement.

Dec 20, 2017

When grief is an occupational hazard, it’s hard not to bring work home. Lidia Schapira teaches doctors how to help patients approach the end of their lives. What kind of lessons did her children learn from a parent who regularly cares for and loses seriously ill patients? Lauren Goldstein talks to Dr. Schapira, her mother, the current Editor in Chief of Cancer.Net, and a Conquer Cancer donor about growing up in the shadows of cancer.

Lidia Schapira, an oncologist specializing in quality of life, talks candidly with her daughter, Lauren Goldstein, about how she managed work-life balance while caring for seriously ill patients and raising young children. We learn that she approaches the care of patients with the same dedication and attention she has for her family, and how at times, that was incredibly difficult.


Ms. Goldstein is a doctoral student in psychology at UCLA. Dr. Schapira is the director of the Cancer Survivorship Program at Stanford, a generous donor to the Conquer Cancer Foundation, and acts as the editor in chief for cancer.net, ASCO's patient information website, supported in part by the Conquer Cancer Foundation. Dr. Schapira begins this segment by sharing why she became a doctor.


I think I fell into being a doctor, in part, through identification with my dad, who was a wonderful, kind, compassionate doctor, and also because of my real desire to do something that would help people. But there was this inevitability of things spilling over, and the boundaries, I think, become very porous between work life and home life, especially when the work is so emotionally intense.


And specifically, I remember one holiday we had as a family in Prince Edward Island, when I was very heavily involved in grieving the anticipated loss of a very, very dear patient who was in the final weeks of life. And I just was so careful, I thought, not to have this spill over. And I just wondered if you remember back to that holiday, and if you could sense that something was going on?


I do remember that vacation. I remember it very well. I got the new NSYNC CD, and I listened to it probably 70 times in a week. And I did not know what was going on with you at all. When you were grieving, I honestly didn't see it.


That's reassuring for me in so many ways. It really is a balm to hear that. Do you remember any of the fun events, like the famous lunch in East Boston with a family that made the best meatballs?


Yes. This was a patient who, I think, was quite sick at the time.


Very ill, a lady who did not want to know her diagnosis, didn't speak a word of English--


Spoke no English.


--wanted to have us over for Sunday dinner.


Yep. And she made the best meatballs I've ever had. It was like an all-day meatball affair, the way that she prepared those. This was a moment that was presumably sad for you and some sort of goodbye in some way, a way to incorporate that personal relationship into the goodbye, maybe. I don't know how sick she was in that moment. But I know now that that was near the end of her life, and I missed it, because the meatballs were so good. [CHUCKLES] So I'm curious what you would say you're most proud of.


Most importantly and meaningful to me are the moments when I felt that my presence made a change in a situation that by my own ability to be there, either by connecting to somebody, by giving solace to a family, by making the right diagnosis, by providing access to a therapy that profoundly impacted on somebody's life, or just by accompanying and witnessing what was happening, that my being there actually helped. That is absolutely and by far the stuff that gives me the greatest sense of peace and purpose.


And then on a perhaps more intellectual level, when I felt that by virtue of a conversation or a talk or my modeling my behavior, a young physician got it, that they got something that was important that they had not seen before that perhaps had remained theoretical or abstract. But they got it, so perhaps my feeling is that mentoring is almost like an extension of parenting. It's almost as joyful as when your kids somehow get something that is so enormously important to you, and that they show you that they really understood it at a deep and lasting level.


I'm also curious what you would say you were least proud of.


It was when I had a meeting in Washington. We were living in Boston at the time. And it was 7:00 in the morning, and I was about to go out to the airport. And I remember Karen, Timmy's mom called and said she couldn't do carpool that afternoon. And I said, oh, yeah, yeah, that's fine. Mark was in third grade.


And I rushed out the door thinking that I would make alternate pickup arrangements for Mark. And I forgot. Then I went on to my lovely meeting and everything. And it wasn't until I was on the shuttle on my way home, and they said, we're about to take off, and without smartphones, and at that point, there was no way to communicate that I remembered that I hadn't acted on the information.


But I remember walking into the house that night, and both Mark and your dad gave me a look like, we don't want to hear from you. Your name is mud.


And I really had that image of juggling. And I felt that one of those little glass balls that I had in the air had just dropped and shattered. But fortunately, there were very few such moments.


The Conquer Cancer Foundation's mission is to conquer cancer worldwide by funding breakthrough research and sharing cutting-edge knowledge. To learn more about the participants in this session and others like it, please visit conquer.org/storycorps.